Health and Medical Guide to Bones, Joints and Muscles Muscular Dystrophy Health information topics about Muscular Dystrophy: Children 1. Everybody's Different Nobody's Perfect Muscular Dystrophy Association http://www.mdausa.org/publications/nobody/index.html 2. Breathe Easy: Respiratory Care for Children with M Muscular Dystrophy Association http://www.mdausa.org/publications/breathe/index.html 3. Meaning of Muscular Dystrophy Nemours Foundation http://kidshealth.org/kid/health_problems/bone/muscular_dystrophy.html Clinical Trials 1. ClinicalTrials.gov: Muscular Dystrophies National Institutes of Health http://clinicaltrials.gov/ct/gui/action/FindCondition?ui=D009136&recruiting... 2. ClinicalTrials.gov: Muscular Dystrophy, Duchenne National Institutes of Health http://clinicaltrials.gov/ct/gui/action/FindCondition?ui=D020388&recruiting... Coping 1. Parents & Family: Connecting with Your Son Parent Project for Muscular Dystrophy Research http://www.parentprojectmd.org/emotional/connecting.html 2. Learning to Live with Neuromuscular Disease: A Mes Muscular Dystrophy Association http://www.mdausa.org/publications/learning/index.html 3. 101 Hints to "Help-with-Ease" fo Muscular Dystrophy Association http://www.mdausa.org/publications/101hints/ Diagnosis/Symptoms 1. Muscle Biopsies Muscular Dystrophy Association http://www.mdausa.org/publications/Quest/q74ss.html 2. Accurate and Affordable Diagnosis of Duchenne Musc National Institute of Neurological Disorders and Stroke http://www.ninds.nih.gov/news_and_events/news_articles/news_article_dmd_tes... 3. Creatine Kinase Test Muscular Dystrophy Association http://www.mdausa.org/publications/Quest/q71ss-cktest.html 4. Electromyography and Nerve Conduction Velocities Muscular Dystrophy Association http://www.mdausa.org/publications/Quest/q75ss.html Disease Management 1. Physical Therapy Parent Project for Muscular Dystrophy Research http://www.parentprojectmd.org/treatment/physical.html Genetics 1. Genetics Home Reference: Muscular dystrophy, Duche National Library of Medicine http://ghr.nlm.nih.gov/condition=musculardystrophyduchenneandbeckertypes 2. Genetics Home Reference: Myotonic dystrophy National Library of Medicine http://ghr.nlm.nih.gov/condition=myotonicdystrophy 3. Genes and Disease: Duchenne Muscular Dystrophy National Center for Biotechnology Information http://www.ncbi.nlm.nih.gov/books/bv.fcgi?call=bv.View..ShowSection&rid=gnd... 4. Genes and Disease: Myotonic Dystrophy National Center for Biotechnology Information http://www.ncbi.nlm.nih.gov/books/bv.fcgi?call=bv.View..ShowSection&rid=gnd... National Institutes of Health 1. Muscular Dystrophy (MD) National Institute of Neurological Disorders and Stroke http://www.ninds.nih.gov/disorders/md/md.htm Newsletters/Print Publications 1. Quest Muscular Dystrophy Association http://www.mdausa.org/publications/Quest/q-curr.cfm Organizations 1. National Institute of Neurological Disorders and S http://www.ninds.nih.gov/ 2. National Institute of Arthritis and Musculoskeleta http://www.niams.nih.gov/ 3. Parent Project for Muscular Dystrophy Research http://www.parentprojectmd.org/ 4. Muscular Dystrophy Association http://www.mdausa.org/ Overviews 1. Muscular Dystrophy Mayo Foundation for Medical Education and Research http://www.mayoclinic.com/invoke.cfm?id=DS00200 2. Major Characteristics of the Nine (9) Muscular Dys Muscular Dystrophy Association http://www.mdausa.org/publications/fa-md-9.html Related Issues 1. Seating Requirements for Young Men with DMD Parent Project for Muscular Dystrophy Research http://www.parentprojectmd.org/treatment/seating_req.html 2. Parents & Family: Daily Life with Duchenne Parent Project for Muscular Dystrophy Research http://www.parentprojectmd.org/emotional/life.html 3. Frequently Asked Questions about Wheelchairs Parent Project for Muscular Dystrophy Research http://www.parentprojectmd.org/treatment/wheelchairsfaq.html 4. Frequently Asked Questions about the Use of Splint Parent Project for Muscular Dystrophy Research http://www.parentprojectmd.org/treatment/splintsFAQ.html Research 1. Protein May Hold Key to Repair of Damaged Muscles National Institute of Arthritis and Musculoskeletal and Skin Diseases http://www.niams.nih.gov/ne/highlights/spotlight/2004/follistatin.htm 2. MDA Research Advances Rapidly Muscular Dystrophy Association http://www.mdausa.org/publications/resdev.html 3. Gene Therapy Reaches All Damaged Muscles in Muscul National Institute of Arthritis and Musculoskeletal and Skin Diseases http://www.niams.nih.gov/ne/highlights/spotlight/2004/gene_muscle_mouse.htm... 4. Exercise is Safe and Beneficial for People with Fa American Academy of Neurology http://www.neurology.org/cgi/content/full/64/6/E22?maxtoshow=&HITS=20&hits=... 5. New Gene Therapy Vector May Lead to Treatment for National Institute of Child Health and Human Development http://www.ninds.nih.gov/news_and_events/news_articles/news_article_md_gene... 6. Scientists Come Step Closer to New Muscular Dystro National Institute of Arthritis and Musculoskeletal and Skin Diseases http://www.niams.nih.gov/ne/highlights/spotlight/2005/heregulin.htm Specific Conditions 1. Distal Muscular Dystrophy (DD) Muscular Dystrophy Association http://www.mdausa.org/disease/dd.html 2. Congenital Muscular Dystrophy (CMD) Muscular Dystrophy Association http://www.mdausa.org/disease/cmd.html 3. Duchenne Muscular Dystrophy (DMD) (Also Known as P Muscular Dystrophy Association http://www.mdausa.org/disease/dmd.html 4. Becker Muscular Dystrophy (BMD) Muscular Dystrophy Association http://www.mdausa.org/disease/bmd.html 5. Emery-Dreifuss Muscular Dystrophy (EDMD) Muscular Dystrophy Association http://www.mdausa.org/disease/edmd.html 6. Facioscapulohumeral Muscular Dystrophy (FSH or FSH Muscular Dystrophy Association http://www.mdausa.org/disease/fshd.html 7. Myotonic Dystrophy (DM) (Also known as Steinert� Muscular Dystrophy Association http://www.mdausa.org/disease/dm.html 8. Oculopharyngeal Muscular Dystrophy (OPMD) Muscular Dystrophy Association http://www.mdausa.org/disease/opmd.html 9. Rare Muscular Dystrophies: Congenital, Distal, Eme Muscular Dystrophy Association http://www.mdausa.org/publications/fa-rareMD.html 10. Limb-Girdle Muscular Dystrophy (LGMD) Muscular Dystrophy Association http://www.mdausa.org/disease/lgmd.html Teenagers 1. Muscular Dystrophy Nemours Foundation http://kidshealth.org/teen/diseases_conditions/bones/muscular_dystrophy.htm... Treatment 1. Steroids / Nutritional Supplements / Antibiotics Parent Project for Muscular Dystrophy Research http://www.parentprojectmd.org/treatment/supplements.html   Recommended Resources: [CaRP] Can't open cache file. 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